Phoenix Children's Hospital along with Gold Sneaker Society is about not letting childhood cancer sneak up on another child.

      

https://www.facebook.com/#!/GoldSneakerSociety

Hi Jean Robb here, As many of you already know I have two very special kids in my life that have been effected by Childhood Cancer Our little Mia Foutz, who continues to amaze me with her strength and little Rockstar Ronan, who although he lost his battle continues to insprire others to fight.  Please join in the effort to STOP Childhood Cancer!

About

An awareness campaign for children's cancer using the "gold" color as a symbol to end childhood cancer for good. Join the movement!

Mission

Don't let childhood cancer sneak up on another child. Gold Sneaker Society is a movement to raise awareness globally for all children fighting for their lives with cancer and to spread the word about the devastating personal and financial impact that childhood cancer can leave behind for children and families.

Description

Gold Sneak Society is about not letting childhood cancer sneak up on another child. It is a movement to raise awareness globally for all children fighting for their lives with cancer and to spread the word about the devastating personal and financial impact that childhood cancer can leave behind for children and families.
13,500 children are diagnosed with cancer every year in the United States
...

1 in 5 children diagnosed with cancer will die.

Everyday, 46 school children will be diagnosed with cancer.

One in 300 boys will develop cancer before the age of 20.

One in 333 girls will develop cancer before the age of 20.

The incidence of invasive pediatric cancers is up to 29% in the past 20 years.

Pediatric cancer is the leading cause of death by disease among US children ages 1-14.

In 2009, only 4% of the National Cancer Institute’s budget was used for pediatric funding.

Young cancer patients often have a more advanced stage of cancer when first diagnosed.

The average age of death for a child with cancer is 8.

In 20 years the FDA has initially approved only one drug for any childhood cancer. Half of all chemotherapies used for children's cancers are 25 years old.

Physical and neurocognitive disabilities resulting from treatment may prevent childhood cancer survivors from fully participating in school, social acitivities and eventually work.

Cancer kills more children than AIDs, asthma, diabetes, cystic fibrosis and congenital anomalies combined.

Source: jeffgordonfoundation.org

 

http://rockstarronan.com/

Ronan Baby

In August of 2010 our beautiful baby boy Ronan was diagnosed with Stage 4 Neuroblastoma cancer. He passed away on May 9th 2011 in his mothers arms after an 8 month battle where he never gave up until he was told it was time to let go. This is his adventure. This is his life. This is his story. It will never end.

Rockstar Ronan Mission Statement

We are not your ordinary 501 (c)3. This is about so much more than just raising money. We want to change the world. We want to be the reason you wake up in the morning and make the most of you life. We want to be the reason that you stand up for yourself and don’t take no for an answer. We want to be the reason you are the best mommy, father, son, daughter, sister, brother, friend, lover, boyfriend, girlfriend, aunt uncle, grandma, grandpa, or ROCKSTAR that you can possibly be. We want to be the reason you live your life the the fullest because that is how Ronan would have lived his. And he never got the chance. Which is fucking bullshit. You are here. You can do anything. So DO IT! We are not here to raise a small amount of money for childhood cancer. But we are thankful for every penny that you give. We are here to raise millions and millions of dollars for a very big dream that we have. A dream that involves the best research, care and treatment that is possible to give to cancer patients and their families. Because it is what they deserve. They deserve to not feel like they are just another number, not just another statistic. They deserve to know that they matter and they are in the best hands possible, in every aspect of this horrific fight. This is us. This is for Ronan. This is for all the kids fighting cancer who deserve better. Who deserve the best. Who deserve to have a voice and to stop being treated like lab rats. Ronan is the reason behind this movement that is about to take place. He is the reason that we will continue to fight this fight. No parent should have to outlive their child. People need to start paying attention because as we have learned, Childhood Cancer, does not discriminate. It is the NUMBER ONE disease children in the word. It claims the lives of more children annually than any other disease – more than asthma, muscular dystrophy, multiple sclerosis & AIDS combined. It can happen to anyone. Including the most beautiful, loving, happy, family…. like us. Ronan was our everything. We were his everything. It is not acceptable that we no longer can be together. Ronan fought this disease with everything he had and lived his entire life full of courage, laughter and love. As Ronan’s mama, I made Ronan a promise that I plan on keeping. I promised him that I would continue to fight for him until people start listening, survival rates improve, and one day, a cure is found. With your help, you can play an active role in this. It will be no easy feat: It is going to take an army of love and support. Ronan did not deserve to die. No child does. The fact that this is happening in this day and age is unacceptable. Thank you for visiting Ronan’s blog. Thank you for supporting us. Thank you for believing that there is more to life, than the everyday “stuff,” that we tend to get caught up in. Thank you for wanting to be a part this adventure. Miss you Ronan. Love you forever. I won’t break my promise.
xoxo
Maya Thompson
Ronan’s mama
www.rockstarronan.com

I have some very special friends with a very special six year old girl named Mia. This very little girl has now had to take on a very big battle. She has been diagnosed with a malignant tumor called a medulloblastoma. Her mommy Sandra and her daddy Matt have been so strong for their little Mia. They are also kind enough to open the door and allow you in to share this very difficult journey. You see Matt and Sandra along with the entire Foutz family are also a driving force behind a great concept called the Human Tribe Project. I would like to tell you a little more about Mia's story before I show you how you can get involved with the Human Tribe Project.

 

 

Princess Mia In support of Mia Foutz

Show your support by purchasing a Tribe Tag.

Mia today still smiling ang fighting!

It all began in early August when Mia got what we thought was a stomach bug. After a few days of throwing up, she got severely dehydrated (a common side effect of not being able to keep food and water down) and had to be hospitalized to get fluids. After returning home, she was better for a few days but starting throwing up again. Our pediatrician told us that it was likely just remnants of the stomach bug. But, after several more days of continued throwing up, our pediatrician sent Mia's file to a gastro-intestinal specialist at Phoenix Childrens Hospital. The specialist thought it sounded like gastroparesis, a side effect of a stomach virus that leaves the stomach unable to push down food. We altered Mia's diet, even putting her on fluids only, but the throwing up continued. On September 3rd, we finally got in to meet the specialist. After hearing the full extent of Mia's condition, he said it was unlikely gastroparesis, but that we'd have to do a series of tests to figure out exactly what it was, including a CT and an MRI to check her head. As much as we wanted to start the tests right away, the doctor told us we would start the next week doing them on an outpatient basis and that it could take up to 3 weeks until we have an answer. On Sunday afternoon, Mia started violently vomiting to the point we were worried about her hydration again. Knowing we could wait until after Labor Day, we took her to PCH Monday. After hours of going through the admitting process, Mia was given a CT scan. Although we were initially told that the scans came back clear (by someone who obviously didn't know what he was talking about), they scheduled a full MRI of her head and spine. By early afternoon Tuesday we had the MRI results back and were given the horrible news that Mia had a brain tumor.
On Wednesday morning at 9:30am, the PCH surgeons wheeled Mia into the operating room to remove the tumor. By 4pm, after a grueling day of waiting, we were told that the surgery went as well as it could have. The surgeon believed that he removed the entire tumor and he did not think there would be much neurological damage. Mia woke up Wednesday night, moved her arms and legs and spoke to us. She was truly ticked off at the world, but seems great otherwise.
The doctors are doing an MRI this afternoon to confirm that they got out everything and we should have the pathology back on Monday. What happens next depends on those results. We will likely be at PCH for the next few weeks so we created this Tribe Page to keep you all updated. Thank you for all your love, support and prayers these past few days.

If you would like support Mia and her family with good wishes and prayers or if someone you know would benefit from the project go to the Human Tribe Project by clicking the link above.

Here's how it works!

Human Tribe Project: Social Media Meets Charitable Giving

Posted On: June 04

Despite the promises of health care reform, many people who face catastrophic illness also face massive medical bills and the threat of personal bankruptcy. These financial concerns compound emotional burdens that they face. The Human Tribe Project is a website that provides both financial and emotional support to a loved one in crisis.

The Human Tribe Project allows "tribes" to give money directly to a beneficiary in need. There are no parameters stipulating how money raised is spent. And all those who donate receive a wearable token of support in the form of a "Tribe Tag" in return.

Founded by Phoenix attorney Jaclyn Foutz in memory of her friend Kindra McLennan. When McLennan was diagnosed with cancer, her friends and family came together to raise money and to offer emotional support. Although McLennan lost her battle with cancer, she inspired the founders of the Human Tribe Project to create a website that combined social networking and charitable giving.

How the Human Tribe Project Works:

A "Tribe Leader" sets up a website on behalf of a beneficiary, who in turn has a space to blog and share her or his experiences. The blog can be viewed by invited members of her or his Tribe. Tribe members can provide financial support by purchasing the Tribe Tags and provide emotional support by reading, commenting, and sharing the site with others. As the Human Tribe Project website argues, "As the Tribe evolves, the personal networks of each of the Tribe Members can become Tribe Members as well. Human Tribe Project was founded upon the premise that all people belong to a larger Tribe, and that this Tribe can be a powerful resource when one of its members faces a personal or health-related crisis." As important as the financial support can be, this emotional support can oftentimes be just as sustaining.

Tribe Tags - much like a dog tag - are available for $20 or $100. The money raised ($15 of the former and $75 of the latter) is distributed to the beneficiary on a monthly basis. "Tribe Tags are the cornerstone of our site," said Human Tribe Project co-founder Jaclyn Foutz. "They offer monetary support to ease the Beneficiary's financial burden, enabling him to focus on getting better and act as a visible reminder of the constant encouragement and support the Tribe offers the Beneficiary."

Although health care reform promises to lessen some of the financial burdens for those facing medical crises, the need remains for projects that help with the fundraising and with the emotional support. The Human Tribe Project is an innovative site that tackles both.

Learn More

What it is

Human Tribe Project is a free website that allows friends and family to come together, show support and raise money for a loved one during a health crisis. It was founded upon the premise that all people belong to a larger Tribe comprised of their loved ones and acquaintances, and that this Tribe can be a powerful resource when one of its members is in need.
Human Tribe Project was initially created to help cancer patients bridge the gap between insurance coverage and real costs, and to provide emotional support along the way. According to a report released by the Kaiser Family Foundation and the American Cancer Society, private health insurance doesn’t protect cancer patients from high costs. Despite having insurance, many cancer patients incur large debts, in some cases causing them to file for personal bankruptcy, and even delay or forgo treatment simply because they can't afford care. In addition, research shows that recovery from cancer is significantly better if a patient receives emotional support during treatment.
The need for emotional support and relief from a financial burden is not confined to cancer. Human Tribe Project can be used to help any person in crisis, whether that crisis is the result of a medical diagnoses, premature birth, natural disaster or personal hardship. Whatever the cause, Human Tribe Project can facilitate the support.
Human Tribe Project is not a non-profit organization, and differs from many fundraising institutions. Instead of directing money toward research or through a large non-profit requiring extensive administrative and operational costs, Human Tribe Project gives money directly to individuals in need, at the time of their need. Unlike most other organizations, one hundred percent of the money gifted through Human Tribe Project goes directly to the individuals in need.

How it works

Human Tribe Project enables people to unite as Tribes and mobilize support quickly and easily through this website the instant that a loved one notifies them of a crisis. A Tribe Leader sets up a Tribe Page, on behalf of the Beneficiary, and includes the Beneficiary’s story and an explanation of why funds need to be raised. The Tribe Leader then unites friends and family by entering in their email addresses, thereby inviting them to join the Tribe.
Tribe Pages are used to keep the Beneficiaries and their Tribes connected. Each Tribe Page contains a blog, a guestbook, moveable web badges and an option to invite others to join the Tribe. Most importantly, Tribe Pages contain the Tribe Tag Store where Tribe Tags can be purchased to financially support the Beneficiary.
Each Tribe Page has both semi-public and private portions. The Beneficiary’s blog, guestbook and all posts are private and only viewable by invited Tribe Members. The Beneficiary’s picture and story and the Tribe Tag Store for each Beneficiary are public and viewable only when a person searches the Beneficiary’s name. Allowing these portions to be semi-public maximizes the number of Tribe Tags that can be purchased and thus maximizes the amount of support a Beneficiary can receive.
For more specific information about how Human Tribe Project works, please visit our FAQs.

Tribe Tags

Tribe Tags are the foundation of Human Tribe Project because they offer both the emotional and financial support necessary to help a loved one through a time of crisis. They facilitate financial support in the form of Monetary Gifts, and emotional support by acting as a visible reminder of the constant encouragement and support the Tribe offers the Beneficiary. They unite the Tribe around the Beneficiary and exemplify how the humanitarian spirit connects us all.
The Tribe Tag design is inspired by a traditional dog tag, which is emblematic of a group coming together to overcome a struggle and an iconic form of identifying one individual in a group of many. Tribe Tags include three charms: a Human Tribe Project tag, a Tribe Print charm symbolizing the common thread that connects us all, and a personalized charm bearing the initial of the Beneficiary in whose support it was purchased. Tribe Tags are steel charms strung on a ball chain. They can be worn as a sixteen inch or eighteen and a half inch necklace or carried on a two and a half inch key chain.
Tribe Tags are sold in the Tribe Tag Store on each individual Tribe Page. Nickel Plated Steel Tribe Tags sell for $20, $15 of which is given directly to the Beneficiary as a tax-free Monetary Gift from the purchaser. Sterling Silver Tribe Tags sell for $100, $75 of which is given directly to the Beneficiary as a tax-free Monetary Gift from the purchaser. Monetary Gifts are paid out monthly, based on the number of Tribe Tags sold that month. One hundred percent of the Monetary Gifts, without any amount deducted for operations or processing, are given to the Beneficiary. For more information about the Monetary Gifts, please visit the Monetary Gift Policy.
To purchase a Tribe Tag in support of your Beneficiary, Find or Create a Tribe now.

My Tribes Spread the Word

Tribe Tag

To purchase a Tribe Tag, find a Tribe

 I can tell you first hand that this is a beautiful way to keep family, friends and well wisher together in the fight for recovery. God Bless little Mia and her brave family.

 

The Center for Cancer and Blood Disorders at Phoenix Children's Hospital is the largest pediatric program of its kind in Arizona, providing complete care for children diagnosed with malignancies and/or life-threatening hematologic diseases.

The Center's many research partnerships, such as Children's Oncology Group (COG), give pediatric cancer patients access to the newest treatments and most successful protocols, which have helped improve cancer survival rates dramatically in recent years. Our participation in these national collaborations ensure we are offering the same treatment here that a child would get at any of the other top-notch children's hospitals in the country.

As the pediatric population in Arizona continues to grow, the demand for these services rise along with it. In response, the CCBD has built a large group of physicians who each specialize in a field of cancer and who practice at several locations throughout the Valley.

How you can help:

1) Register to be a bone marrow donor in September with Promo Code "PCH" at www.BeTheMatch.org

2) Donate blood, visit www.unitedbloodservices.org for details

3) Make a contribution to our cancer center at www.phoenixchildrens.com/donate.

THANK YOU!