If children have the ability to ignore all odds and percentages, then maybe we can all learn from them. When you think about it, what other choice is there but to hope? We have two options, medically and emotionally: give up, or fight like hell. - Lance Armstrong
Ava Holder story
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Diagnosed with Stage 4 Neuroblastoma on 2/3/09 and relapsed in her brain on 12/30/09, 4/1/09 and 8/25/11.
Completed:
14 cycles of high-dose chemo, 7 cycles of Temador
36 sessions of radiation
6 cycles of 3F8
5/09 -Tumor resection - abdomen
1/6/10 -2 tumors resected from the brain
4/1/10 - 2 tumors resected from brain again
8/25/11-1 tumors resected from the brain again
2 cycles of 8H9 at MSKCC
Dear Friends and Family, I am writing this letter on behalf of my granddaughter, Ava Holder, who as many of you know is battling cancer. This February marks the 3rd anniversary of Ava’s diagnosis of Stage 4 High-Risk Neuroblastoma. Over the last 1,095 days Ava has had huge obstacles to overcome. Ava has never had a break in her treatment – it has been a constant for our family. It is remarkable that Ava has survived this disease and her treatments to this point. We were not sure Ava would make it to her 2nd birthday. Ava has relapsed in her brain 3 times and in her body several times. Ava is currently in the fight of her life with an inoperable brain tumor and a tumor on her pelvis. Doctors have given Ava limited treatment options as she has had her maximum amount of radiation and 17 cycles of high dose chemo which has required 2 stem cell rescues, 5 tumors removed from her brain, and 1 major resection surgery in her abdomen. Despite all this Ava is a vibrant four and a half year old who loves to ride her bike, play dress up, and most of all loves her big brother Eli. Ava looks forward to the future and has dreams to one day become a doctor and help kids just like her. |

Ava has never given up her fight and neither has her family. This February Ava with her family will travel to Houston, Texas where they will embark on an experimental trial that involves chemotherapy and a vaccine treatment. The year long trial consists of traveling to Houston every 2 weeks for the vaccine. The expense incurred over the next year will include airline travel, lodging, ground transportation, meals, and various medical expenses and copays plus any unforeseen costs. Total monthly costs are expected to exceed $2,000. These costs will be incurred every month for a year. Many of you have asked what you can do to help. Having a child with cancer is stressful. It takes it’s daily toll on you physically, emotionally and financially. Chrisie and Nick are so strong and have always handled the situation with such grace and dignity. They would never complain or ask for help themselves which is why I’m reaching out for them and my granddaughter. The expenses of associated costs surrounding Ava’s treatments will add up quickly. We have seen our friends and family come together in the past to help Ava but continue to be asked what can be done to help now. So I ask you, our friends and family, to assist financially Ava’s family with current travel and medical expenses. Any contribution is welcomed, no amount is too small.

Thank you for your continued support and love. Please share this letter with others who have the ability to support Ava. Family updates can be viewed
at: www.caringbridge.org/visit/avaholder
All checks can be made payable to Ava’s parents. Chrisie and Nick have set up a savings account dedicated to Ava’s medical/travel expenses.
Nick and Chrisie Funari 18036 N 93rd Street Scottsdale AZ 85255
With Great Love and Hope,
Bruce and Sharon Elliasen Cell#602-432-2962 # CaringBridge / Ava Holder / Welcome
www.caringbridge.org
Click on the link above to see Ava's page
Ava's CaringBridge website is made possible through donations. Join the 67 donors who made a donation to CaringBridge in tribute to Ava.
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